mgdb.info
Summary
The Modell Global Database of Congenital Disorders provides conservative estimates based on best available data, with the goal of estimating the burden of congenital disorders in ways that will support and promote policymaking and the delivery of appropriate services.
Individual estimates may be based on incomplete information, and are open to continuous revision.
We welcome contributions and corrections from users to improve the available picture by email to info@mgdb.info.
The Modell Global Database of Congenital Disorders is a research output of the UCL Centre for Health Informatics & Multiprofessional Education (CHIME), a research department of the Institute of Health Informatics
The Modell Global Database of Congenital Disorders
Core Resources
- Epidemiological Methods in Community Genetics and the Modell Global Database of Congenital Disorders (MGDb) - document and data files online open access in UCL Discovery
- Special Issue of Journal of Community Genetics: Epidemiological Methods in Community Genetics open access at Springer Verlag including:
- An overview of concepts and approaches used in estimating the burden of congenital disorders globally
- Historical overview of development in methods to estimate burden of disease due to congenital disorders
- Methods to estimate access to care and the effect of interventions on the outcomes of congenital disorders
- Chromosomal disorders: estimating baseline birth prevalence and pregnancy outcomes worldwide
- Estimating the birth prevalence and pregnancy outcomes of congenital malformations worldwide
- Rare single gene disorders: estimating baseline prevalence and outcomes worldwide
- MGDb on Researchgate.net
Other associated work
- Global Neural Tube Defect point estimates for 2015 in Hannah Blencowe et al. (2017) "Estimates of global and regional prevalence of neural tube defects for 2015: a systematic analysis" available open access in the Annals of the New York Academy of Sciences
- MGDb-ZA - work applying MGDb methods at the national level in South Africa
- The March of Dimes Global Report on Birth Defects: The Hidden Toll of Dying and Disabled Children, 2006
- The BornHealthy Health Needs Assessment (HNA) Toolkit